I just found this website and hope I can help. It helps in some odd way to know that I am not the only person suffering from this disease. I, too have pancreatitus but I thought it was supposed to go away..but it has come back. I sincerely pray that your husband is doing better. I was struck by your comment about your husbands cysts on his pancreas....I\'ve never heard of any other person to have them. Two years ago I was in ICU on a respirator for 20 days because of those darned things. They caused my other organs to fail as well. I had a feeding tube for close to 5 months. I thought I had recovered (don\'t get me wrong, my doctors saved my life). However, my symptoms are returning and I\'m scared. I know it has been too long for me to give you advice about the surgery but for what it is worth...DON\'T let them perform surgery on your husband. Number one, he\'s too ill for a surgery that serious. His body can\'t take it. His immune system is too low at this point. On top of that the actual surgery is way too invasive, allowing infection to overcome his already weakend body. That\'s why when I had 3 cysts on my pancreas and was off the respirator and feeling pretting good, my doctors wouldn\'t even allow my feeding tube to be placed in my side...way too invasive for infection. So, I lived several months with a tube hanging out of my face but my cysts started to resolve themselves (without the threat of infection). I was a very lucky girl to have doctors that thought about the risks of infection and the inability of my body to fight it off...I love them all. I also lost a LOT of weight. By the time my tube came out I weighed 88 pounds...but I gained that AND someone elses back as well. I lost my hair because of the rapid weight loss and the meds, did that happen to your husband too? I know I\'m am rambling but I too do NOT want to do this all over again but have recently fould out that it is not something that just goes away. I can deal with some (actually a lot of pain) but I have started to have seizures again from it and that is not good to NOT deal with it which is what I prefer to do (always gets me in trouble). Please let me know how Mr. Jones is doing and please let him know that he is in my prayers. If I may be so bold, please pray for me too.
LaDawn