Re: pseudo-tumor cerebri

Posted by Mary-Cathrin on 12/08/04 at 01:47 PM

hello everyone-first i just want to say how sorry i am that over half of you are in pain and confusion. i was too in that exact same position 5 years ago. i will be 19 in March but i never thought i would make it even this far. my symptoms started out as a bacterial infection where i was hospitalized. i had so much sinus pressure that they thought it was a bad case of sinusitis then, menangitis. after negative mri\'s, catscans, and a few days in the hospital, i had 2 spinal taps where i hit almost off the charts. i was sent to a neurologist but he told me it was not a pseudo-tumor and since there was no evidence of illness, i was \"faking\" the pain. so i went to 23 different doctors, from endocronologists to psychiatrists, and was put on over 30 different antibiotics that didnt work. i finally went to an eye doctor. he said i had papelademea in the back of my eye and said it was likely i had a pseudo-tumor. so after 2 years of people telling me i was a hypochondriac, a liar, and a psycho, i ended up where i started. let me just say to you that if you have pain, do not let anyone tell you that you are crazy. go to a good eye doctor and get a spinal tap. because i let this man tell me that i was not ill, i wasted 2 years of my life in a deep state of depression where i thought i would never come out. but after being put on diamox, a diaretic, i don\'t have half the pressure i used to. i just finished my first semester of college and i am moving to new york in a year to pursue a career in acting. i hope my story will help atleast one of you and to let you know...there is hope. even after all the pain, i am glad i went through it. it made me a stronger person. God has given this to you for a reason. don\'t let it discourage you because this is happening for a reason! good luck to you all and God Bless!

Replies	Posted By	#	Date & Time
Re: Re: pseudo-tumor cerebri	tracey	0	05/09/05 05:20 AM