I have just been diagnosed with PTC, 2 weeks and 1 day now. My vision had begun to decrease drastically and my eye doctor referred me to an ophthalmologist which in turn sent me for MRI and to a neurologist. One spinal tap has been done to date. I am on Diamox and I am experiencing awful side effects. I have lost my appetite, constant nausea, headache, weakness, fatigue, pins in needles in my hands and feet. I also am experiencing pain in my legs. I need help too. Hang in there.