Re: Re: Re: pseudo-tumor cerebri

Posted by JUNIOR on 10/18/04 at 02:41 PM

HELLO.. I CAN UNDERSTAND HOW YOU FEEL CAUSE I HAVE THE SAME ILLNESS I WAS DIAGNOSED WITH THIS ILLNESS 3 YEARS AGO IVE HAD 3 SPINAL TAPS DONE MY FLUID PRESSURE IS 58 AND SINCE THIS ILLNESS I HAVE THESE BLACK SPOTS CALLED FLOATERS IN FRON OF MY EYES ITS ANNOYING AND MY VISION IS BLURRED TOO BUT DOCTOR SAYS MY VISION IS 20 20 BUT ONLY I KNOW THE PAIN AND DISCOMFORT IM GOING THROUGH IVE BEEN SO MANY TIMES IN AND OUT OF HOSPITALS I CANNOT EVEN KEEP COUNT, I WAS ON DIAMOX BUT WAS TAKEN OFF THAT DUE TO THE HORRIBLE TINGLING EFFECT IN MY HANDS AND FEET NOW IM ON FUROSEMIDE 1 TAB 3 TIMES A DAY IT DOESNT HELP ME AT ALL I ALLWAYS HAVE THIS SICK FEELING BAD HEADACHES AND WEAKNESS IN MY HANDS AND LEGS, IT WAS DURING ONE OF THE MRIS I WAS HAVING THAT THE DOCTOR NOTICED THAT I HAD SOME FLUID IN MY SPEHNOID SINUS AND HE TOLD ME TO HAVE A BIOPSY OF MY SINUSES DONE TO RULE OUT A TUMOR I HAD THIS HORRIBLE PAINFULL SURGERY DONE LAST YEAR THEY FOUND A FUNGAL GROWTH AND REMOVED IT BUT THE PAIN IS STILL THERE EVEN AFTER SURGERY THERE IS A VERY SHARP PAIN ON THE TOB OF MY HEAD AND IT BECOMS A LIL CONFUSING FOR MY ENT AND NEUROLOGIST CAUSE THEY DONT KNOW IF THE PAIN IS FROM THE SINUSES OR THE PRESSURE IN MY HEAD. IM CONFUSED TOO I DONT KNOW IF I SHOULD HAVE A LUMBAR SHUNT PLACED ? CAUSE ACCORDING TO MY NEUROLOGIST 258 IS NOT THAT HIGH PRESSURE AND MEDS ALONE CAN HELP BUT HE DOES NOT UNDERSTAND THE PAIN IN MY HEAD WHEN EACH DAY I WAKE UP WITH A BAD HEADACHE & A SICK FEELING I AM NO MORE THE HAPPY PERSON I WAS BEFORE CAUSE OF ALL THE PAIN AND DISCOMFORT IVE BEEN THROUGH IN THESE PAST 3 YEARS. YOU SAY YOU HAD A LUMBAR SHUNT PLACED ?? COULD YOU TELL ME SOMETHING MORE ABOUT THIS YES IVE HEARD ITS A BIG RISK AND WOULD DO ANYTHING TO AVOID HAVING A SHUNT PLACED, PLEASE TELL ME SOME MORE ABOUT THIS SHUNT DO YOU STILL HAVE IT ??? BYE FOR NOW & HOPE TO HEAR FROM YOU SOON GOD BLESS TAKE CARE