Re: Re: Re: pseudo-tumor cerebri
Posted by Tim Speich on 02/04/05 at 08:17 AMI have been suffering from PTC for 8yrs. It has consumed my life also.I understand this is rare in men but I have it.Diamox works some but the headaches are bad.I did not now it could last 10 yrs.I to have a very good Dr. in Houston he is from John Hopkins.He saved my life. I have had 12 to 15 spinaltaps. But I still can\'t function normally.I believe the pain even killed me once. I was on life support for 12 days. my body just gave up.My Dr.said it will burn itself out in time. Thanks for listening venting helps!
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