I was diagnosed in April of this year, and I like yourself have many physicians. The reason I was diagnosed is because I went for my 2 year vision exam and the doctor told me he wanted me to see a specialist, but wouldn\'t tell me why. He said he would make the appointment, and he did the next day and told me that I needed to go to Duke University Eye Center. My headaches tend to be on the left side of my head and behind my eye on that side. It is strange because I will have headaches for a week and then no headaches for 2 or 3 weeks. They say the optic nerve in both eyes are swollen and treating this with Diamox (500mg) which have created all new problems. If you have questions, email me.